1 /5 Cole Lowery: If I could give negative stars, I would. My partner has nocturnal seizures, and has only had one EEG done while awake. Hilburger suggested taking him off of the medication that worked for nearly 4 months, without even considering any other tests for NOCTURNAL seizures. He said, "It couldve been a one-off thing".
After I reminded him how many NOCTURNAL seizures my partner had, the time between each, and suggested more accurate testing, he looked at me as if *I* was the issue and simply repeated, "It couldve been a one off thing since the test came back inconclusive." He stopped prescribing him the medication that was controlling his seizures, without any further explanation.
4 days. Hed stopped taking the meds for only four days.
One test. While he was awake. When he only has his seizures while asleep. Didnt even explain how my love should properly wean off. I learned from a family member after the relapse that he shouldve done that. I blame myself too; I shouldve thought to ask.
The EMT and the doctor that handled him after this last seizure both said that it didnt make any sense for him to stop a medication that was controlling his seizures. The doctor looked *angry* about it.
I wonder if explaining what Ive personally been through would have changed anything. I wonder if reminding him that my partners biological father passed from the same condition, would have changed anything. I wonder if repeating a history that suggests more undocumented and unwitnessed seizures, would have changed anything. We shouldve gotten a second opinion, at the very least. I am blaming myself for this all. My love was simply excited to work again; now he needs an extended leave once again, and is depressed.
Im not sure if it was a race thing or not. If youre Black, or have nocturnal seizures, I beg you, please make the trips to Strong instead. Get a second opinion if he wont explain his decisions, please. He could have had my love killed, without any explanation for his decisions. I dont want anyone else to go through watching over their partner all night just to witness another seizure for the first time in nearly 4 months. My love is too good a man, and has too little faith in the world to pursue a lawsuit.
I dont want to be angry with Hilburger. I pray that the Lord lifts these feelings from my spirit, despite the fact that I cannot close my eyes without seeing the agony he was in. I keep telling myself that my love is back on the meds, hes okay, hes strong. I just want to make sure anybody with a similar background [Black/nocturnal seizures] isnt killed.
Good luck and God bless.
